Update on Lexie's stay at St. Jude's in Memphis TN & next steps

Our family has finally returned from our week long stay at St. Jude Children's Research Hospital!

Lexie's appointments began on Monday with a visit to the ophthalmologist. It was a relief to hear from the doctor that Lexie may not have retinoblastoma after all. On Wednesday they performed the EUA, and confirmed that Lexie had been misdiagnosed, and is actually suffering from Coat's Disease.

While Coat's Disease is still a serious and difficult problem to treat, we are extremely happy to know our daughter will not have to endure the lifelong problems that are associated with retinoblastoma.

During our stay at St. Jude's, Lexie continued through eight hours of appointments with various doctors each day. She received an MRI on Thursday which will help doctors to determine the severity of her Coat's Disease.Throughout this whole process, Lexie has done a wonderful job of putting up with the poking and prodding from all the doctors, and she has been handling everything better than we could have ever hoped for.

Because St. Jude Children's Research Hospital deals with childhood cancers, AIDS, and immune system disorders, Lexie has been referred on to a retina specialist at Children's Hospital of Los Angeles. She will meet with the doctor on Monday December 28th and we will know more information on what types of treatment we will be facing. We do know that treatment will involve multiple surgeries that will vary depending on what stage she is in.

We would like to take this opportunity to thank the many people who have been involved in helping our family while we are dealing with this difficult time in our lives.

First, we would like to give a HUGE thank you to Sarah McMahan for organizing the silent auction and all of the work she put in to make it so successful. Also, we would like to thank everyone who donated items to the auction and everyone in attendance. Your generosity is truly amazing to our family, we thank you all so much!

We also want to thank St. Jude's for the incredible treatment we received during our stay, both in the hospital and during our time at the Memphis Grizzlies House.

Of course we are also so thankful to all of you who have continued to contribute to Lexie's fund and those who have sent your best wishes and prayers.

Wells Fargo Bank
*Please reference account#1329323883
*Donation can be made in person at any Wells Fargo Branch or
Mail to:
PO Box 3488
Portland, OR 97208-3488

It is at a time like this where no words are good enough, and there are not enough thank you cards in the world to show how much we appreciate everyone who has been so wonderful to us!

We wish you all a very Merry Christmas!

We will continue updating the blog as we receive more information.

Thank you so much for keeping us in your thoughts and prayers.

Chelsy, Jessy, Carter, & Lexie

St Jude's Update

Update on Lexie Mae

Great news!!!

December 16th St. Jude’s did an Examine Under Anesthesia (EUA) and determined that Lexie has Coat’s Disease, not Retinoblastoma. This is fantastic news in a bad situation. Lexie does not have cancer! Her treatment at St Jude’s will end on Thursday, December 17th and she has been referred to LA Children’s Hospital for further treatment with the Coat’s Disease.

It will be a long road to recovery and correction of this disease, however, once treated she will face no other lifelong effects.

Results from silent auction: $4,300 and counting! Thanks everyone for your support and contributions.

If you didn’t get an item at the auction, please consider donating straight to her fund:

Wells Fargo Bank

*Please reference account#1329323883

*Donation can be made in person at any Wells Fargo Branch or

Mail to:

PO Box 3488

Portland, OR 97208-3488

Thank you all so much for your love. support and prayers.

Love,

Chelsy, Jessy, Lexie & Carter

UC Davis Declines Care/Next Stop Memphis, TN

Despite having an exam under anesthesia and MRI scheduled on Thursday 12/10 at UC Davis, they informed us on Wednesday that they were unable to accommodate us due to our lack of insurance.

Through the exhaustive efforts of Tim Puckett and Abby White of Daisy’s Eye Cancer Fund, we were able to set up an appointment with St. Jude’s Children’s Hospital in Memphis, Tennessee. On Saturday December 12th we will be flying to Memphis to begin our stay at St. Jude’s.

We will be meeting with the ophthalmologist on Monday, and an exam under anesthesia will be performed on Wednesday, with a possible removal of Lexie’s left eye at that point in time.

There are other tests and exams that will be performed, but we will not know the extent of what needs to be done until we begin the process at St. Jude’s.

Our family would like to express our appreciation of everyone who has reached out to us during this difficult time. We are overwhelmed with the generous outpouring of support that has come from friends, the community, and even those who do not know our family.

A silent auction fundraising event to help with the mountainous health costs has been organized:

December 15, 6:30pmNew Life Four Square Church/Le Petit Kids Club918 Northwood Blvd.Incline Village, NV

For questions regarding this silent auction or to donate items, please contact Sarah McMahan at 775-287-0064 or trisarahmc@yahoo.com.

We also continue to accept donations for Lexie's care via paypal or through checks sent to an account that has been established in Lexie's name at Wells Fargo Bank.

An account has been established in Lexie's name for contributions:

Wells Fargo BankPO Box 3488
Portland, OR 97208-3488*

Please reference account#1329323883

*Donation can be made in person at any Wells Fargo Branch.

*Donations can also be made via paypal through the link below:

Thank you so much for keeping us in your thoughts and prayers.

Chelsy, Jessy, Carter, & Lexie

Update-Diagnosis Retinoblastoma

On Friday, December 4, Lexie met with a specialist at UC Davis, who unfortunately confirmed her diagnosis as Retinoblastoma, or cancer of the eye. This is very bad news, and we need to act quickly. On December 10, Lexie must return to UC Davis to undergo an MRI under anesthesia, which will show if the cancer has spread to the other eye, the optic nerve, or any other part of the body. If this MRI confirms the tumors that the doctor felt during the routine exam, Lexie's eye will be removed the same day.

As you can imagine, our family is devastated by this news and the severity and speed at which it's coming, but we are trying to remain optimistic. We sincerely appreciate all of your concern and prayers, and are extremely grateful to everyone who has reached out to us.

Unfortunately Lexie still does not have health insurance, and we've run into even more red tape from crossing the state line to get her treatment.

As such, we have put together a silent auction fundraising event to help with the mountainous health costs:

December 15, 6:30pmNew Life Four Square Church/Le Petit Kids Club918 Northwood Blvd.Incline Village, NV

For questions regarding this silent auction or to donate items, please contact Sarah McMahan at 775-287-0064 or trisarahmc@yahoo.com.

We also continue to accept donations for Lexie's care via paypal or through checks sent to an account that has been established in Lexie's name at Wells Fargo Bank.

An account has been established in Lexie's name for contributions:

Wells Fargo Bank
PO Box 3488
Portland, OR 97208-3488
*Please reference account#1329323883

*Donation can be made in person at any Wells Fargo Branch.

*Donations can be made online by clicking the Paypal button below:

A donation of any amount would mean so much to our whole family and be so appreciated, and allow us to get Lexie the medical treatment she so desparately needs.

Please check back as we will be regularly updating this blog for all those interested on the progress of Lexie's treatment plan.

Thank You All & God Bless You,

From Lexie Mae and all of us that love her.

Help Lexie Mae

For those of you who don't know her, Lexie Mae is a two year old girl who needs your help. Lexie and her family are currently seeking medical treatment with pediatric opthamologists who specialize in the treatment of Retinoblastoma and Coats' disease. It is unclear as of yet exactly which disease she may be afflicted with, and unfortunately they are both extremely serious.

For those of you who do know Lexie and our family personally, we wish to thank you for the many calls, emails, and prayers that we've received since this all began. In response to your requests to offer assistance to our family as we navigate the health care maze, we've created this blog. Our goal is to raise money and awareness, as well as to share our journey with you.

RETINOBLASTOMA

COATS' DISEASE

Both of these diseases require many medical tests to accurately diagnose and treat. Sadly Lexie does not have medical insurance to cover these costs. That is where your help comes in!

If you could find it in your heart to contribute to her medical care, Lexie and our family would be forever grateful. An account has been established in Lexie's name for contributions:

Wells Fargo Bank

PO Box 3488

Portland, OR 97208-3488

*Please reference account#1329323883

*Donation can be made in person at any Wells Fargo Branch.

*Donations can be made online by clicking the Paypal button below:

Please check back as we will be regularly updating this blog for all those interested on the progress of Lexie's treatment plan.

Thank You All & God Bless You,

From Lexie Mae and all of us that love her.